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Accessing School Services: A Guide for Parents of Children with Uveitis
(PDF
File)
Sharon Ray, ScD, OTR/L
Tufts University, Boston School of
Occupational Therapy
http://www.uveitis.org/kids/school/access.pdf
This material was presented originally at
the Parents' Workshop
3rd Annual Pediatric Uveitis Conference
Ocular Immunology and Uveitis Foundation
May 2004
Parents? Do you have a question about how to access school
services? About working with your school? Teachers. Do
you have a question?
Post a note on the Parent Corner at
http://www.uosg.org
We will reply.
RESOURCES FOR ASSISTING STUDENTS WITH LOW VISION
How is Vision Affected by Uveitis?
Vision
will always be affected when there is inflammation inside the eye. How
vision will be affected depends on many factors.
Vision may fluctuate from relatively "normal" to very poor. Children
with uveitis may be able to read with little assistance one month and
then may need adaptive text the next. Or, the visual problems may be
relatively stable and predictable. Glare can be a big problem inside and
out of doors. Communication with the child's family is crucial to
understanding how your particular student is doing and what specific
adaptations will need to be implemented.
Supplemental
Classroom Materials
Print and Audio Materials
American Printing
House for the Blind
1839 Frankfort Avenue
P.O. Box 6085
Louisville, KY 40206-0085
1-800-223-1839
(502) 895-2405
http://www.aph.org
• Provides free subscriptions
to Reader's Digest, Newsweek and other magazines on disposable
audiocassettes. Provides Reader's Digest in Braille.
Braille Circulating Library, Inc.
2700 Stuart Avenue
Richmond, VA 23220
(804) 359-3771
(804) 359-3743
• Loans Braille materials, talking
books, audiocassettes, and large print Christian materials.
Choice Magazine
Listening
85 Channel Drive
Port Washington, NY 11050
(516) 883-8280
http://www.choicemagazinelistening.org
• Offers selected articles
from popular print magazines on special-speed, 4-track
audiocassette, available through the Library of Congress.
Provides free service nationwide to eligible persons.
National Library Service for Blind and Physically
Handicapped
Library of Congress
1291 Taylor Street, NW
Washington, DC 20542
1-800-424-8567
(202) 707-5100
(202) 707-0744 (TDD)
nls@loc.gov
http://www.loc.gov/nls
• Provides free library
service to individuals with visual impairments. Offers Braille
and large print materials and recorded books and periodicals.
New York Times/Large Type Weekly
229 W. 43rd Street
New York, NY 10036
(212) 556-1234
1-800-631-2580
http://www.nytimes.com/nytstore/publications/index.html
• Offers subscriptions to the
New York Times in a 16 point font.
Recording for the Blind and Dyslexic - Headquarters
The Anne T. MacDonald Center
20 Roszel Road
Princeton, NJ 08540
1-800-221-4792
(609) 452-0606
http://www.rfbd.org
• Provides free cassette
tapes, textbooks for students, and materials needed for
occupational pursuits.
Recording for the Blind Regional Offices
(415) 493-3717 - California
(212) 557-5720 - New York
Talking Tapes for the Blind
16 Sunnen Drive, Suite 162
St. Louis, MO 63143-3800
(314) 646-0500
1-877-926-0500
http://www.talkingtapes.org/
• Provides textbooks on
audiocassettes for students with visual, physical, cognitive and
learning disabilities.
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SPECIAL
EDUCATIONAL ENTITLEMENTS AND UVEITIS
USA
Canada
UK
Send us information for this section
UNITED
STATES
Individuals with Disabilities Education Act (IDEA)
Children with uveitis whose vision impairment interferes with their
ability to do school work qualify for special education considerations
under the Individuals with Disabilities Education Act (IDEA).
Website:
www.ed.gov/offices/OSERS/Policy/IDEA/regs.html
Special education considerations in the United States include such
things as support for modification of assignments or the environment, or
for specialized equipment. If the child needs a special computer
screen or program, or a scribe, this could be funded under special
education.
Americans with Disabilities Act, Section 504
Children with uveitis whose vision does not interfere with school
work may be eligible for accommodations under section 504 of the
American with Disabilities Act
Website:
www.hhs.gov/ocr/504.html
INTERNATIONAL
CANADA
Canadian National Institute for the Blind (The
CNIB)
Website:
http://www.cnib.ca
Council of Canadians with Disabilities (CCD)
Website:
http://planetamber.com
Canadian Abilities Foundation (CAF)
Website:
http://www.enablelink.org
Linked Information for Kids with Disabilities
Website:
http://www.linkd.org
Materials Resources Centre, Government of
Alberta, Canada
Resources for Students with Visual Impairments
Website:
http://www.lrc.learning.gov.ab.ca/pro/visual_imp/visual_imp_index.htm
UNITED KINGDOM
Web site for Special Education in the U.K.
Website:
www.dfes.gov.uk/sen/
Copy of the Special Educational Needs and Disability Act 2001
Website:
www.hmso.gov.uk/acts/acts2001/20010010.htm
Contact a Family Fact Sheet: Special Educational Needs
in England
Website:
www.cafamily.org.uk/educatio.html
User friendly fact sheet. Guide to the procedures for identifying,
assessing and making provision for children's special educational needs.
National Federation of Families with Visually
Impaired Children
Website:
http://ww.look-uk.org
Describes a variety of support for parents
including the provision of a family officer who can advise on education
and other matters.
National Blind Children's Society
Describes support to parents of visually impaired children and young
people
Website:
www.nbcs.org.uk/educat/edservice.php
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GETTING SUPPORT AS A TEACHER OR PARENT
Books
Negotiating the Special Education Maze: A Guide
for Parents and Teachers.
Anderson, W. , Citwood, S., & Hayden, D. (1997).
Negotiating the Special Education Maze: A Guide for Parents and Teachers
(3rd ed.). Bethesda, MD.: Woodbine House. (800) 843-7323
Online Support
Uveitis
Support Group, Boston
Sponsored by the Uveitis/OID Support Group and the Ocular
Immunology and Uveitis Foundation, C. Stephen Foster, M.D., president.
Online support for anyone living with uveitis. Special
sections for parents, adults, and children. Educational resource
specialists. Teachers are welcome to post
as well.
Ask a Question
"Ask
Dr. Foster" - an online forum where questions of concern to
teachers or parents can be posted. This is public forum sponsored
by the Ocular Immunology and Uveitis Foundation. Dr. Foster is
Clinical Professor of Ophthalmology, Harvard Medical School.
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FOR MORE INFORMATION
ABOUT VISION REHABILITATION RESOURCES
National Organizations
National Eye Institute
National Institutes of Health
Extensive list of low vision resources
http://www.nei.nih.gov/health/lowvision/resources.asp
Websites
Children with Low Vision
Website:
http://www.low-vision.org
This website gives practical suggestions,
appropriate for parents and teachers, for supporting the development of
the child with vision challenges. It has material written in English and
in Spanish about developing your child's vision, and a guide for parents
of infants and young children with vision impairment. It goes through
school age and the the suggestions are practical and easily implemented.
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ABOUT UVEITIS
Ocular Immunology
and Uveitis Foundation
Cambridge, MA, USA
Website:
www.Uveitis.org
National Eye Institute
National Institutes of Health
Website:
www.nei.nih.gov
American Uveitis Society
Website:
www.uveitissociety.org/pages/index.html
Pars Planitis.org
Website:
www.parsplanitis.org
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RESOURCES FOR CLASSROOM TEACHING
Teach Children about Vision
We encourage you to teach your class about the eyes and vision. This is
an extensive list of online resources written especially for children.
This symbol indicates that the material is on another website. We have
checked the websites we link to and think they are good. But, website
content can change at any time and websites don't have to tell anyone
that they have changed. So, when leaving the Uveitis Kids Page, please
be sure to check the privacy policy of each new site you visit. If they
ask for your name or address, be sure to talk to your parents or
teacher. This is our privacy statement for
the Kids Page.
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MATERIAL
WRITTEN FOR KIDS
student or class
that would like to participate.
